Sometimes there are no words

Desmoplastic small-round-cell tumor (DSRCT)  is a rare and aggressive type of cancer that typically occurs as masses in the abdomen. Because the disease is often misdiagnosed tumors frequently remain undetected and can grow quite large and metastasize to other parts of the body.

The disease can metastasize through the lymph nodes or the blood stream affecting the spleen, diaphragm, liver, intestines, lungs, bones, bladder, central nervous system and the brain.  It is primarily a childhood cancer and the prognosis is poor.

In June of last year I told you about my friend Mark and his family, his beautiful wife Akiko, their two boys, Joshua and Jeremy, and their little girl, Jaimie.  Jaime was diagnosed with DSRCT in December of 2012.  A lot of you pledged miles for #TeamJaimie and some of you donated to the Go Fund me page set up for her. I tried to give you updates occasionally but I didn’t want to invade their privacy and I still don’t want to.

On Friday morning, Jaimie passed away.

I can’t even begin to imagine what Mark and Akiko and the family must be going  through right now, what they’ve been through, it’s just heartbreaking.  Sometimes, there are no words I continue to pray for the family.

Jesus said, “Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.”
Matthew 19:14

The girl who deserves all the medals.

Five things because it’s Friday.

Erika, you bitch! Can you please make up your mind where you would like to go?

In case you weren’t aware of it, we have two seasons in Florida, hurricane and non-hurricane. We’re smack dab in the middle of hurricane season hence the tropical storm that is looming, the one named Erika.

tropical storm

It’s always a fun time when we have to batten down the hatches and prepare for the storm. Fortunately we have never had a major storm near us but we still have to prepare. Good times.

Sunday is my wonderful mother’s birthday and since she is in Tennessee and I won’t get to spend the day with her, I’d like to take this time to wish my Mom the most wonderful day ever. Happy Birthday a little early Mom, I love you and miss you. (And your present is on the way 😉 )

Mom Birthday
Speaking of birthdays, when I was trying to decide what I wanted for mine, I came across the next two items on etsy. I thought they were both pretty cool gifts and I have decided to order them and gift myself. (Am I the only one who does this?)

You can click on the images to go to the etsy stores.

Runners necklace
runner's fork
Did you see the video of the women’s 10,000 meter World Championships in Beijing? If I’ve said it once, I’ve said it 100 times and I’m pretty sure I’ve shared at least 1 or 2 other videos, but damn, you aren’t at home until you get through the door people!

And one last thing and it’s the most important. Y’all may remember my friends Mark and Akiko, and their beautiful daughter Jaimie. I wrote about Jaimie and her illness here.

After seeing a video that Mark posted of Jaimie running, I decided to run the Sarasota Half Marathon in honor of Jaimie with #TeamJaimie on my arm. I planned on sending her the medal immediately after but time got away from me and life sort of got in the way.

Recently Jaimie was once again admitted to the hospital and I really wanted to get that medal to her so I sent it out last week when we were in Englewood.  This morning I woke up to a message from Mark, and this beautiful picture:

Jaimie and her medal
That medal is finally home!

She earned it. She runs a marathon every day of her life and I hope she knows how inspiring she is and that she deserves ALL the medals.  I sure hope she has room for some more because every medal I earn from this point forward belongs to her.

Keep fighting Jaime! We’re all rooting for you! #TeamJaimie

What do you do with your race medals?
Who inspires you?

Getting ready for tomorrow…

As far as running goes, I took Friday and today off. My IT Band has been tight and no matter what I do I haven’t been able to work it out. Currently I’m soaking in biofreeze so we’ll see what happens. At least I can be somewhat proactive about it. The same cannot be said about the weather.

weather

I really hope the heat doesn’t do me in. There is a high pressure anchored to the East of Florida and it will be here through the weekend. That means that Sunday the high will run about 5-8 degrees above average. I hope it doesn’t get as hot as it did on Friday, 87 degrees was crazy hot for this time of year.

In case you’re wondering why I’m so concerned about the weather, it’s because I’m running the Sarasota Half Marathon on Sunday so yeah, I’m concerned.

Sarasota half Marathon

I’m hoping my IT band loosens up and I can finish before it starts to heat up and that’s the plan. That being said, the course is beautiful, the race is extremely well organized and I’ll be running amongst many friends, so regardless of the weather or my time, this will be an epic race.

Hope to see you tomorrow!