I’m back.

I guess I’ve been MIA for a while, huh?  Well, it wasn’t really intentional, it’s just that we’ve had a shit ton of stuff going on around here and quite honestly, I wasn’t all that motivated to write about it.  I’m back now so let’s catch up.

soccer

First and foremost, how freakin long are the World Cup Games?  I mean, jeez Louise, it’s been weeks since I’ve seen Kelly and Ryan and I’m starting to wonder if soccer is a permanent part of the Fox Network now.  No offense for those of you who love soccer, it’s just a bit much for me.

And also, has anyone else noticed the similarities here?

I’m just sayin.  Is it just me or do you see it?

I haven’t been running since Friday so obviously I’ve had a lot of time on my hands.

MacGyver is buying all the bells and whistles for the new boat.  He’s purchased new drink holders, and hatch covers, and rod holders and such but most importantly, he bought this:

Hank in his life vest

Hank has already roamed around the boat a bit while it sat in the yard.  Boomer hasn’t been in it yet.  I’m so excited to take them out in the new one because now Boomer has a place to lay down when he gets too hot or tired.

I might even put their favorite rug in there.

dogs

Seriously, how cute are they?

It’s been raining a lot here.  The good news is my flowers are growing like weeds and the mallards have become permanent fixtures so were happy with that.

My mother in law is doing a bit better.  She just had round two of the chemo treatments and is handling them very well.  She hasn’t thrown up at all which is wonderful news.  The treatments have been hard on her stomach though and after the first treatment she developed an ulcer which bled a lot and landed her in the hospital again.  We have to watch carefully to make sure that doesn’t happen again but, other than that, the side effects haven’t been too bad.

And as I mentioned, I haven’t really been running all that much.  The reason is because last week I started feeling short of breath again.  I didn’t really mention it to MacGyver at first but then I told him and my mom about it.  I’m a bit worried because of the pulmonary nodules that they found last year.  I had attributed it to the topamax since I had issues with breathing once I started taking it and I thought because I went off of it, the breathing issues would go away.

They came back and also when I was weeding the yard last week I got dizzy when I stood up and felt like I would pass out.  This and the breathing have me worried.  Unfortunately I can’t get into see the pulmonologist until August 3rd so I won’t know anything until then.  And until that time, I’m gonna,

Dr. Google

It’s a really short week with the fourth being on a Wednesday so MacGyver and I are heading to Nokomis for a little break and Lord knows,  I need it.

What have you been up to lately?

Most small pulmonary nodules are benign but….

Prepare yourself, this is a long one.  According to the Cleveland Clinic, there are two main types of pulmonary nodules: malignant (cancerous) and benign (noncancerous). Over 90% of pulmonary nodules that are smaller than two centimeters (around 3/4 inch) in diameter are benign.  My nodules are only 2-3 millimeters.

Because my nodules are so small, a biopsy is not really an option and neither is a pet scan and besides that, the Pulmonologist didn’t feel either were necessary because they are so small.  The only concern that he had was that they are located in the upper right lung and if they were cancer, this is most likely the place they would be located.  He wants me to have a follow up CT Scan in 6 months and if they haven’t grown, I should be in the clear, as far as lung cancer goes anyway.

That’s the good news.  The bad news is that I failed the Spirometry test.  Apparently, I can breathe in but not out.  That didn’t make a lot of sense to me because when I had breathing problems before it was as if I couldn’t breathe in enough air.  I never felt like I had a problem expelling it and I mentioned this to my regular doctor and also the fact that this had only happened in the last year and the only thing that I could think of that was different was that I was taking Topiramate.  So my doctor and I looked it up and realized that breathing problems, bronchitis, and even pneumonia had been reported with that drug.  I mentioned all of this to my pulmonologist and he dismissed it immediately.

It pissed me off.  A lot.  I mean a whole hell of a lot.  No one knows my body like I do and I am NOT an idiot.

The pulmonologist said that chronic bronchitis or smoking when I was younger caused this.  I told him that I had gone to a pulmonologist years ago (about a year after I quit smoking) and had several lung function tests and scans done and everything was fine.  There were no signs of disease and I haven’t smoked in years.  He then insisted that I have COPD as a result of chronic bronchitis.  So, I told him that I had not had bronchitis at all in the previous 10 years, only in the last year, since taking Topiramate.  And I had had it twice in the last year with little coughing and no mucus at all.  I also told him that the day I stopped taking the drug I could breathe better and that every day it gets better.

And just because I need to prove things to people to see if they are open to learning, or idiots that should be written off, I showed him the sites where many people had complained of respiratory issues with Topiramate.  He said no one should go to the internet for medical advice.  So, I showed him a case study that I found in the American Journal of Medicine about a woman who almost died from acute eosinophilic pneumonia as a result of taking Topiramate.  He said that it was a rare case and he didn’t think my case was related to a drug at all.

But I do.  And I feel strongly about it.  And I have my regular doctor on my side because she believes it too.

I had MRI’s done a year and a half ago and they showed no issues at all.  I have never had breathing problems in the past and I’ve been a runner for years.  I scheduled a follow up in six months and he wanted to prescribe an inhaler but I don’t feel that I need it so I politely declined.  He then said that he did find it perplexing that I’m able to run for miles at a time despite what the test showed.  He also admitted that things didn’t really add up but he still refused to believe that this may all be drug induced and he said that with COPD eventually, ‘my wheels will fall off the wagon’, whatever the hell that means!  Admittedly, he said he is not a runner, is fairly sedentary and needs to exercise but cant understand why anyone would want to run.

I won’t be at that follow up appointment.  I’ve already scheduled with another physician who specializes in immunology and allergies and focuses on issues regarding the lungs.  Unfortunately, my insurance company will not pay for the visit because she isn’t in the network but I don’t care.  I will curb my shopping for the next year if I have to because she was highly recommended and I am not fucking around with my health.

And for the record, I ran three and half miles this morning.  And it felt amazing and healthy.

Thank you to everyone for the prayers and well wishes.  I won’t stop until I find out what’s going on, I can promise you that.  And I’ll still be running when I’m 102!